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Blogging about MS: Responses to my blog

I’ve been blogging about life with MS for about 18 months now. I maintained my anonymity for the first twelve months, but since January 2015 I have embraced my pseudonym and come out of the MS closet. I find the entire process liberating.

Quite frankly, it would be too much effort to hide all of the little things that are obvious to anyone in my daily life. Because I am always tired. Because I sometimes veer to the left when walking. Because sometimes I hurt for no reason at all. Because I am covered with bruises that I don’t remember getting. And, I repeat, because I am so tired.

But by not hiding it, I am exposed to the reactions of those I know and love. There have been three broad responses:

  • There are the responsive readers. The ones that comment or text or call when I post something (especially when they find a typo – you know who you are). Number one among these is my mother (unless, of course, it is one of the sadder posts like this one, when the response is deafening silence).
  • There are the quiet readers. The ones I know follow because they prompt me when I fail to post something regularly. Thank you, it is heartwarming to know you notice when I am being lazy.
  • There are the avoiders. The friends and family that feel they can’t unsubscribe because it would be rude and therefore ignore but don’t engage. I understand, there is no judgement. This blog isn’t the happiest place on the internet… All I can say is, wait till you read about my next project for the Wheeler Centre.

Perhaps best of all are the responses from those I do not know. The others with Multiple Sclerosis, who share their experiences with me and I them. Thank you. Your blogs, posts and comments are a source of knowledge for me when I am damn well over another day with MS.

8 thoughts on “Blogging about MS: Responses to my blog

  1. “…damn well over another day with MS.” I love that. I was diagnosed with 2ndryMS in 2012, quit working because of it in 2014, live in the USA, and have always had a fascination with Australia. The first MS book I read was written by an Australian, Dr. George Jelinek. I got it from my cousin in the Netherlands. He was diagnosed with MS about the same time and age (42) as I was. Thank you and enjoy.


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