LATEST BLOGS

Growing up with a Disability-Black Inc_Lasy with MS_Astrid Edwards

Contributor: Growing Up Disabled in Australia

In October 2020 the contributors to Growing Up Disabled in Australia, part of Black Inc’s anthology collection, were […]

LadywithMS_VDAC_Victorian Disability Advisory Council

Appointment: Victorian Disability Advisory Council

In October 2019 I was appointed as a Member of the Victorian Disability Advisory Council. The Victorian Disability […]

ABC News_World MS Day 2019_LadywithMS_2

ABC News: #MyInvisibleMS on World MS Day 2019

Along with Deidre Mackechnie, CEO of Australia, I made my live TV debut on ABC News Breakfast with […]

EXPLORE PREVIOUS BLOGS

ABOUT LADYWITHMS

My real name is Astrid Edwards. I was diagnosed with MS in 2013, and I became a National Advocate for MS Australia in 2015 and a Member of the Victorian Disability Advisory Council in 2019.

I started writing this blog under the pseudonym LadywithMS because I was scared. I was scared of everything – changes to my health (the merest headache became a cause for alarm), the medications available, the emotional reaction of those close to me, the obvious lack of understanding by some medical professionals, and the disease itself.

I’m still scared of the disease. If I wasn’t, it would be because I was in denial. But I have a handle on the rest of it.

And so I write. I’ve written a post about why I blog about MS. It boils down to three things:

  • I write for me, to create a record for myself.
  • I write for family and friends, particularly when I give a detailed health update.
  • And I write for everyone else out there who has MS.
LadywithMS_Top MS blog 2017

MY MS STORY

I worked with Medicine X, MS Australia and MS Research Australia to develop the ‘MS Xplained’ app (read my blog about it here).

 

WHAT ELSE I DO

You can find LadywithMS on Twitter. If MS is what you are interested in, this is where to follow or contact me.

I also happen to be a writer pursing a life not defined by MS. I teach writing at RMIT University, run a podcasting company, host The Garret: Writers on Writing and serve on the Board of Melbourne Writers Festival.

For the far more interesting version of me, check out astridedwards.com or follow me on Instagram, Goodreads and LinkedIn.

LadywithMS_Astrid Edwards