Growing Up Disabled in Australia is published
One in five Australians has a disability. And disability presents itself in many ways. Yet disabled people are […]
Contributor: Growing Up Disabled in Australia
In October 2020 the contributors to Growing Up Disabled in Australia, part of Black Inc’s anthology collection, were […]
Appointment: Victorian Disability Advisory Council
In October 2019 I was appointed as a Member of the Victorian Disability Advisory Council. The Victorian Disability […]
My real name is Astrid Edwards. I was diagnosed with MS in 2013, and I became a National Advocate for MS Australia in 2015 and a Member of the Victorian Disability Advisory Council in 2019.
I started writing this blog under the pseudonym LadywithMS because I was scared. I was scared of everything – changes to my health (the merest headache became a cause for alarm), the medications available, the emotional reaction of those close to me, the obvious lack of understanding by some medical professionals, and the disease itself.
I’m still scared of the disease. If I wasn’t, it would be because I was in denial. But I have a handle on the rest of it.
And so I write. I’ve written a post about why I blog about MS. It boils down to three things:
- I write for me, to create a record for myself.
- I write for family and friends, particularly when I give a detailed health update.
- And I write for everyone else out there who has MS.
MY MS STORY
I worked with Medicine X, MS Australia and MS Research Australia to develop the ‘MS Xplained’ app (read my blog about it here).
WHAT ELSE I DO
You can find LadywithMS on Twitter. If MS is what you are interested in, this is where to follow or contact me.
I also happen to be a writer pursing a life not defined by MS. I teach writing at RMIT University, run a podcasting company, host The Garret: Writers on Writing and serve on the Board of Melbourne Writers Festival.
For the far more interesting version of me, check out astridedwards.com or follow me on Instagram, Goodreads and LinkedIn.