I started Ocrevus (ocrelizumab) on 30 January 2018. The drug was listed on the Australian PBS for Relapsing Remitting MS (RRMS) on […]
Medical research into Multiple Sclerosis may benefit me in the future, and so I volunteer. Why don’t others?
Every time I have an MRI, I fill out the same safety form again. The form never changes, no matter how many […]
My real name is Astrid Edwards. I was diagnosed with MS in 2013, and I became a National Advocate for MS Australia in 2015.
I started writing this blog under the pseudonym LadywithMS because I was scared. I was scared of everything – changes to my health (the merest headache became a cause for alarm), the medications available, the emotional reaction of those close to me, the obvious lack of understanding by some medical professionals, and the disease itself.
I’m still scared of the disease. If I wasn’t, it would be because I was in denial. But I have a handle on the rest of it.
And so I write. I’ve written a post about why I blog about MS. It boils down to three things:
- I write for me, to create a record for myself.
- I write for family and friends, particularly when I give a detailed health update.
- And I write for everyone else out there who has MS.
WHAT ELSE I DO
I also happen to be a writer pursing a life not defined by MS. I am the founder of The Garret, Deputy Chair of Writers Victoria and Director of Bad Producer Productions. For the far more interesting version of me, follow me on Instagram, Goodreads and LinkedIn.